Thank God they are going to take you in to have the first injection, Jenni. At the very least, you will be carefully monitored and if anything untoward happens, there will be help at hand.

I am not at all surprised that you are very scared in view of what has happened in the past BUT this may be a wonder drug for you. We will pray for that.

When are you going in

Much love to you all

Jeanxxxxx

I fully understand your reasons for the decision, Jenni.

Amanda has suggested whether, given your previous history, a small amount could be given initially and then titrated throughout the day. It may be prudent to ask about this - a sort of "try before you buy" thing! This could be a better way forward for you and certainly worth some thought.

I just can't begin to imagine the huge amounts of pain you have to endure - all day, every day and all night, every night, and can understand your need to do this.

As always, you will be in our prayers.

Much love
Jeanxxxxx

Oh Jenni what an awful position to be in. I really feel for you and wish there was something positive I could say to ease your worries. Having experienced the problems you've been through with different drugs it is no wonder that you have serious concerns about Cimzia. From what I have read, although in the same class as other anti TNfs, it is supposed to be a 'kinder' and less toxic treatment than the others.

I'm sure after your recent experiences staff concerned will do their absolute best to ensure your safety and well being. Treatment in hospital is certainly a necessity and I am glad to hear that this will be the case. Its certainly worth asking the question about titration for the first dose at least. I've never heard of this being done, per se, but when I had my first Infliximab infusion my temperature plummeted so they stopped until my temperature had come up again then re-started on a much slower drip. Took three times as long but I got there and was okay after that!

I think for sure Jenni the drug is not going to kill you. It's understandable to be so apprehensive but the more positive you can be the better chance of success. I don't mean to sound as though I'm undermining what you have already been through or the way you are feeling but this is a really good opportunity that may give you a renewed lease of life, an opportunity that you and your family need.
Stay calm and try to think positive. Will be thinking about you,

Lyn x

Jenni, just praying for you, and so hoping this is the answer for you. You have been through so much, you deserve to find a drug that works, and gives you no problems. I understand too, as everyone else does, why you are so worried about this. In the hospital they can monitor you closely, that has to be the only way. Thinking of you Jenni, and wishing I could do more x

Dear Jenni
just wanted to let you know i'm thinking of you.
Clairexx

Dear Jenni

As a new member, you have been an inspiration to me with your positivity and your ability to make me smile and have a chuckle, you are a lovely person. Like us all, you are so much in my thoughts and feel sure having read quite a lot about this treatment I feel very positive this will work for you.

Sending my love Julia x

Think i spelt it right this time......

Thinking of you Jenni and hope this new drug work wonders for you !

Sophie x